Books

The Silent Epidemic: A Child Psychiatrist’s Journey Beyond Death Row
By Dr. Susan D. Rich, MD, MPH
The Silent Epidemic is a poignant account of a child psychiatrist’s first hand experiences from the sterile, dehumanizing halls of death row to her own clinical successes diagnosing and treating Neurodevelopmental Disorder Associated with Prenatal Alcohol Exposure (ND-PAE). Her call to action for reforms in alcohol policy includes shifting prevention paradigms toward preconceptional strategies rather than after pregnancy recognition, when much damage from prenatal alcohol exposure may have already occurred.

Addressing Fetal Alcohol Spectrum Disorders (FASD)
By SAMHSA
“Reviews alcohol screening tools and interventions for use with pregnant women and women of childbearing age to prevent fetal alcohol spectrum disorders (FASD). Also, outlines methods for identifying individuals with FASD and modifying treatment accordingly.”

Alcohol and Neurobiology: Brain Development and Hormone Regulation
Edited by Ronald R. Watson
This information will assist the researcher, clinician, and student in comprehending the complex changes caused by direct and indirect effects of single drugs at the cellular level.

“Cheers! Here’s to the Baby!” A Birth Mother’s Discovery of Fetal Alcohol Syndrome
By Linda Belle La Fever
This book reveals the struggles and heartbreaks of a loving single mother who unknowingly made a terrible mistake that forever altered the potential of her youngest son. Danny, now a young adult, was diagnosed when he was five years old.

Damaged Angels
By Bonnie Buxton
“Part heartfelt memoir, part practical guide, Damaged Angels recounts Bonnie Buxton’s struggles to raise an adopted daughter whom she didn’t realize was afflicted with fetal alcohol disorder. Her book also offers guidance to parents who have children with FASD.”

Fit to be Tied: Sterilization and Reproductive Rights in American, 1950-1980
By Rebecca M. Kluchin
“Rebecca Kluchin impressively navigates a critical period in the history of reproductive health in America. The book is very innovative in a subtle and understated way: Kluchin is one of the first historians of gender and medicine to provide a sophisticated framework for mapping the sterilization practices of the pre-World War II period into the post-Roe V. Wade culture.”

Forfeiting All Sanity
By Jennifer Poss Taylor
“Jennifer Poss Taylor shares her family’s experience with FAS and the perseverance, sense of humor, and love that daily overcome its effects. Taylor’s honesty and personal insight will capture readers as she describes the daily challenges of raising a child with special needs. Every parent will be touched by this story.”

Ghosts from the Nursery: Tracing the Roots of Violence
By Robin Karr-Morse and Meredith S.Wiley
“As the nation becomes alarmed by reports in the media of the growing wave of violent children, Ghosts from the Nursery presents startling new evidence that links aggressive and violent behavior to the effects of abuse and neglect on the infant brain”

Karli and the Star of the Week
Developed by NOFAS
Developed and incorporated into a lesson that encourages students to understand and be accepting of others’ abilities and disabilities. The module includes the storybook, lesson plan, and a CD-ROM with teacher background information.

Message in a Bottle: The Making of Fetal Alcohol Syndrome
By Janet Golden
In “Message in a Bottle”, Janet Golden charts the course of Fetal Alcohol Syndrome through the courts, media, medical establishment, and public imagination.

My Invisible World: Life with my Brother, His Disability, & His Service Dog
By Morasha R. Winokur                                                                                                                               “Eleven-year-old Morasha shares her in-depth and personal life story of what it feels like to be the sister of a sibling that struggles with FASDs. “My Invisible World” is an incredible inside account of the daily issues that arise for a child that deals with an invisible brain injury.”

Our Fascinating Journey: Keys to Brain Potential Along the Path of prenatal Brain Injury
By Jodee Kulp
“Our FAScinating Journey will introduce readers to another winding path in working with prenatally exposed children. Jodee illuminates this path with lights that shine the hope of possibilities for these special kids.”

Supporting Caregivers of Children with Fetal Alcohol Spectrum Disorders
By Anne Hedelius
This paper addresses the challenges of creating and sustaining a support network for parents of children with an FASD.

The Broken Cord
By Michael Dorris
“The controversial national bestseller that received unprecedented media attention, sparked the nation’s interest in the plight of children with Fetal Alcohol Syndrome, and touched a nerve in all of us. Winner of the 1989 National Book Critics Circle Award.”

The Challenge of Fetal Alcohol Syndrome: Overcoming Secondary Disabilities
Edited by Ann Streissguth and Jonathan Kanter
“In the first book of its kind, experts describe how to help people with Fetal Alcohol Syndrome. A summary of recent findings and recommendations is presented by the team who conducted the largest study ever done on people of all ages with Fetal Alcohol Syndrome and Fetal Alcohol Effects.”

The Fatal Link
By Jody Allen Crowe
“This book reveals the undeniable connection between school shooters and their mother’s alcoholic behaviors. The author, Jody Allen Crowe, is uniquely positioned to identify this never before seen profile of school shooters. He is an educator who gained his knowledge working in the epicenters of violence and abnormal behaviors.”

The Insanity Offense: How Americas Failure to Treat the Seriously Mentally Ill Endangers its Citizens
By E. Fuller Torrey
“E. Fuller Torrey, the author of the definitive guides to schizophrenia and manic depression, chronicles a disastrous swing in the balance of civil rights that has resulted in numerous violent episodes and left a vulnerable population of mentally ill people homeless and victimized.”

The Long Way to Simple
by Stephen Neafcy
Steve, an adult with FAS, offers a fresh perspective into FASD from the affected individual’s experience. This easy read offers insights for parents and professionals and encouragement for persons who suffer brain damage from prenatal exposure to alcohol. Order it here on Amazon. Read an article about the book and the author here. Visit Steve’s web site FASFlight.com.

Trying Differently Rather Than Harder, Second Ed.
By Diane Malbin, M.S.W.
“This book provides a readable, narrative discussion of the neurobehavioral approach for working effectively with children, adolescents and adults with FASD.”

Understanding Fetal Alcohol Spectrum Disorder
A Guide to FASD for Parents, Careers, and Professionals
By Maria Catterick and Liam Curran
“This is the essential guide to FASD – the most common non-genetic learning disability, which is caused by alcohol consumption during pregnancy. It explains how FASD affects individuals at different stages of their lives, how you can identify it, and gives advice on how to support children, young people and adults with FASD.”

When Rain Hurts: An Adoptive Mother’s Journey with Fetal Alcohol Syndrome
By: Mary Evelyn Greene
“When Rain Hurts is the story of one mother’s quest to find a magical path of healing and forgiveness for her son, a boy damaged by the double whammy of prenatal alcohol abuse and the stark rigors of Russian orphanage life”

Do you know of other great books about ND-PAE? Share in a comment below and we will add it to our ever-growing list.

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